RESOURCES BY DISABILITY

TYPES OF DISABILITIES

ADHD/ADD

Children and Adults with ADD (CHADD) – Provides education, advocacy and support for individuals with AD/HD. (800) 233-4050

ANGELMAN SYNDROME

Angelman Syndrome Foundation – Advances the awareness and treatment of Angelman Syndrome through education and information, research and support for individuals, their families and other concerned parties. (630) 978-4245

AUTISM

Autism Center for Excellence at VCU – Provides technical assistance, training, and research for Autism Spectrum Disorders. (855) 711-6987

Autism Society of America-Virginia Chapters – local chapters provide newsletters/newsblasts; monthly meetings; lending library; parent support; and trainings and educational information for anyone interested in autism spectrum disorder.
Central Virginia Chapter — (804) 257-0192
Northern Virginia Chapter — (703) 495-8444
Tidewater Chapter — (757) 461-4474

Autism Society Tidewater Regional Resources Map 

Commonwealth Autism – Provides information and referrals, training and much more. (800) 649-8481

BLIND/VISUALLY IMPAIRED

Virginia Department for the Blind and Vision Impaired – Empowers blind, visually impaired, and deaf blind individuals to achieve their maximum level of employment, education and personal independence. (800) 622-2155

American Foundation for the Blind – (800) 232-5463

National Federation of the Blind – (410) 659-9314

Virginia Department of Education Blind/Visually Impaired 

BRAIN INJURY

Brain Injury Association of Virginia – Can train persons with brain injury, family members and professionals how to advocate for their needs through their advocacy academy training sessions which focus on how to self-advocate with insurance companies, doctors and school systems. (800) 334-8443

Partnership for People with Disabilities – Positive Behavior Supports, can provide training and list of facilitators. (804) 828-6926

CEREBRAL PALSY

United Cerebral Palsy – The leading source of information on cerebral palsy. (800) 872-5827

Care Connection for Children – Care coordinators who can work closely with children and their families to provide targeted, comprehensive and culturally appropriate care.

DEAF OR HARD OF HEARING

Virginia Department for the Deaf and Hard of Hearing – (800) 552-7917

Virginia Hearing Aid Loan Bank – Open to children under the age of 18 whose hearing loss is confirmed by an audiologist. The bank lends hearing aids and FM systems for up to six months.

Technical Assistance Center for Children who are Deaf or Hard of Hearing – Information and technical assistance for children in the school system who are deaf or hard of hearing.

Virginia Department of Education: Deaf and Hard of Hearing

DOWN SYNDROME

The Arc of Virginia – Affiliated with The Arc of the United States and serving as the state chapter in Virginia, they help people with disabilities, family members, friends and others become advocates themselves. (800) 649-8481

Down Syndrome Association of Greater Richmond – Organization run by parents that provides supports and resources. (804) 447-4713

DUAL SENSORY IMPAIRMENT

Virginia Project for Children and Youth with Deaf-Blindness – Provides distance and on-site technical assistance, training, distance education and networking information to families, educators and service providers for young people with both visual and hearing loss. (804) 828-8252

INTELLECTUAL DISABILITIES

The Arc of Virginia – Affiliated with The Arc of the United States and serving as the state chapter in Virginia, they help people with disabilities, family members, friends and others become advocates themselves. (800) 649-8481

RARE GENETIC DISORDERS

Unique – A source of information and support to families and individuals affected by any rare chromosome disorder and to the professionals who work with them. Unique is a UK-based charity but welcomes members worldwide. Membership of Unique is free.

Chromosome Disorder Outreach – A nonprofit organization that is founded, supported and run by parents. Our children are affected by a wide range of chromosome disorders, including deletions, duplications, trisomies, inversions, translocations and rings. Family Helpline (561) 395-4252

Genetic and Rare Conditions Site – Information on advocacy and support groups, information on genetic conditions/birth defects for professionals, educators, and individuals.

SPINA BIFIDA

Spina Bifida Association – A great resource that provides high quality, confidential information and referral services with chapters in every state.

Spina Bifida Association of Virginia – Virginia’s chapter. SBA of the Roanoke Valley.

TOURETTE SYNDROME

National Tourette Syndrome Association – Offers resources and referrals to help people and their families cope with the problems that occur with TS. Membership includes individuals, families, relatives and medical and allied professionals working in the field.

Tourette Syndrome Association of Greater Washington – A website with information for Washington D.C., Virginia and Maryland.

700 East Franklin Street
P.O. Box 843020
Richmond, Virginia 23284-3020
FAX: (804) 828-0042
TTY RELAY: (800) 828-1120

HELPLINE: (877) 567-1122

EMAIL: cfihelpline@vcu.edu