by Erin Croyle | Aug 7, 2017 | BABY, Complications, Diagnosis, Finding Balance, New Mom/Dad, Parents, PREGNANCY, Prenatal Diagnosis, Uncategorized, YOU
My first-born turns 7 today. His birthday is always bittersweet. I love celebrating him. But remembering that particular time in my life is always a bit difficult. Seven years ago my world got flipped upside down. Sure, every parent can say that. But for us it’s...
by Erin Croyle | Jul 17, 2017 | BABY, Diagnosis, Extended Family, Friends and Acquaintances, Grandparents, New Mom/Dad, RELATIONSHIPS
Time has tremendous healing powers. But the deepest cuts always leave a scar, regardless of how many years fly by. I was talking to a parent recently who was in that terrible time right after a diagnosis; the fog where you question everything. You think about every...
by Erin Croyle | Jun 30, 2017 | BABY, Caregivers, Complications, Diagnosis, Finding Balance, Parents, PREGNANCY, RELATIONSHIPS, Uncategorized, YOU
Are you walking around in a haze? Are you constantly stressed? Angst-ridden? Anxious? Tired? Irritated? Sad? Annoyed? You might have DISABILITY FATIGUE. This isn’t an actual medical diagnosis. It’s a term that entrepreneur and advocate Cindy Liu highlighted in a...
by Erin Croyle | Apr 21, 2017 | Advocacy, BABY, Diagnosis, Doctors, Early Intervention, Help, Individuals, New Mom/Dad, Parents, Uncategorized, YOU
Those of us who work for the Center for Family Involvement are often asked what we do. To be honest, it’s difficult to explain because the list is so long. We have our fingers on the pulse of so many things that affect families affected by disability. Our main purpose...
by Erin Croyle | Apr 19, 2017 | BABY, Diagnosis, Doctors, KIDS, Medical Team, New Mom/Dad, Preschool, Puberty, RELATIONSHIPS, Uncategorized
Comorbidity is an awful term. Morbid, a word we associate most with death, combined with the prefix co, which means together, mutually in common. There is nothing good about comorbidity. But many of us are dealing with it. Dual and multiple diagnoses are very common,...
by Guest Author | Nov 22, 2016 | BABY, Diagnosis, Early Intervention, Finding Balance, KIDS, Middle School, Parents, Uncategorized, YOU
By Nickie Brandenburger Parenting is challenging. When a child has a special need – the challenges can pile up a lot faster. The child is subjected to assessments, labels, and words that the parents have to decipher. While all the testing and labeling is designed to...
