LIVING IN THE COVID MULTIVERSE

LIVING IN THE COVID MULTIVERSE

Anyone else feeling like they are living in a completely different reality than those around them? For the Spiderman fans out there – it’s like we’re Peter Parker slipping in and out of other dimensions of the universe.  For our family of five with an 11-year-old...
PLEASE, JUST GIVE US A SHOT

PLEASE, JUST GIVE US A SHOT

It is appalling that individuals with disabilities and the family members that serve as their caregivers are not being prioritized in the coronavirus vaccine rollout.  Across the country, we are being turned away. We are spending hours crafting emails, making...
I DON’T KNOW HOW YOU DO IT

I DON’T KNOW HOW YOU DO IT

“I don’t know how you do it.” Parents like us hear this statement all the time.   My standard COVID reply has become, “I’m not.” It’s been almost a year in lockdown. And parents of kids with disabilities are not OK.  We feel forgotten. In many states,...
15 WAYS TO GET THROUGH THE DARKEST OF WINTERS

15 WAYS TO GET THROUGH THE DARKEST OF WINTERS

There is no getting around it, this winter is going to be difficult. We are facing some dark days – literally and figuratively.  Now is the time to stay home and embrace the suck.  There’s nothing wrong with making the best of it while acknowledging how hard...
(STAY) HOME FOR THE HOLIDAYS

(STAY) HOME FOR THE HOLIDAYS

The widespread inequities and ableism that 2020 has brought to the surface is palpable. Palpable – a feeling so intense it seems tangible. Do you feel it? How is it manifesting inside of you? Anger? Frustration? Sadness? Exhaustion? All of the above? Perhaps the worst...