by Guest Author | Jan 9, 2020 | BABY, Diagnosis, Doctors, New Mom/Dad, PREGNANCY, Prenatal Diagnosis, Uncategorized
By Jenny Wise According to the Center for Parent Information & Resources, parents who have recently learned that their child has, or will have, an intellectual or physical disability describe feelings of confusion, devastation, heartbreak, and fear. Reaching out...
by Erin Croyle | Nov 22, 2019 | Advocacy, BABY, Caregivers, Diagnosis, Doctors, Extended Family, Finding Balance, Grandparents, Help, Medical Team, New Mom/Dad, Parents, RELATIONSHIPS, Uncategorized, YOU
What exactly is a caregiver? We assume that parent/caregiver is interchangeable. One of the same. It’s not. A caregiver, by definition, is a family member or paid helper who REGULARLY looks after a child or a person who is sick, elderly, or disabled. All parents serve...
by Erin Croyle | Oct 30, 2019 | BABY, Diagnosis, Doctors, Finding Balance, New Mom/Dad, Parents, Uncategorized, YOU
The first time I ever met someone with Down syndrome was the day my son was born. It was love and heartbreak at first sight. Juxtaposition. So much of my life with Arlo is shrouded in juxtaposition, one that is only magnified by his brother and sister who came into...
by Guest Author | Nov 20, 2018 | Advocacy, BABY, Caregivers, Diagnosis, Doctors, Early Intervention, Help, Help, Individuals, Medical Team, New Mom/Dad, Parents, RELATIONSHIPS, Self-Advocacy, YOU
By Valerie Abbott A friend recently reached out to me to talk about getting a second opinion for her son. As my child was diagnosed with hearing loss ten years ago, this mom was struggling with some recommendations offered by her child’s new audiologist and wanted...
by Guest Author | May 23, 2018 | Advocacy, BABY, Doctors, Individuals, Medical Team, Parents, RELATIONSHIPS, Self-Advocacy, YOU
by Angela West As we celebrate Memorial Day, I think about the men and women who fight for our freedom. My mother came here from South Korea and started a life with my father. Even thirty years later, she tells me that she is thankful that I was born in America...
by Erin Croyle | Apr 21, 2017 | Advocacy, BABY, Diagnosis, Doctors, Early Intervention, Help, Individuals, New Mom/Dad, Parents, Uncategorized, YOU
Those of us who work for the Center for Family Involvement are often asked what we do. To be honest, it’s difficult to explain because the list is so long. We have our fingers on the pulse of so many things that affect families affected by disability. Our main purpose...
