by Erin Croyle | Feb 19, 2020 | Advocacy, BABY, Complications, Diagnosis, Early Intervention, Extended Family, Finding Balance, Friends and Acquaintances, Grandparents, Help, Miscarriage, New Mom/Dad, Parents, PREGNANCY, Prenatal Diagnosis, RELATIONSHIPS, Tests, YOU
I vividly remember how badly I wanted to burn every pregnancy and parenting book I came across when my son was born nearly 10 years ago. None of them prepared me for the shock of finding out my newborn had Down syndrome. None of them offered any comfort for the pain...
by Guest Author | Nov 20, 2018 | Advocacy, BABY, Caregivers, Diagnosis, Doctors, Early Intervention, Help, Help, Individuals, Medical Team, New Mom/Dad, Parents, RELATIONSHIPS, Self-Advocacy, YOU
By Valerie Abbott A friend recently reached out to me to talk about getting a second opinion for her son. As my child was diagnosed with hearing loss ten years ago, this mom was struggling with some recommendations offered by her child’s new audiologist and wanted...
by Erin Croyle | Apr 19, 2018 | BABY, Early Intervention, IEP, KIDS, Medical Team, New Mom/Dad, RELATIONSHIPS
We all know occupational therapy (OT) is important, but how many of us really understand what it is? What it’s meant to achieve? Some of us know we need to advocate for it but can’t really explain why it’s needed. The simple answer: Occupational therapists help people...
by Guest Author | Apr 9, 2018 | Advocacy, BABY, Diagnosis, Early Intervention, Individuals, Medical Team, Parents, RELATIONSHIPS, Self-Advocacy, Uncategorized, YOU
by Irene Schmalz I am the Liaison to the Deaf/Hard of Hearing at the Center for Family Involvement. My primary focus is to help parents who just found out their child has failed the newborn hearing screening and/or received the diagnosis of a hearing loss. As part of...
by Erin Croyle | Apr 21, 2017 | Advocacy, BABY, Diagnosis, Doctors, Early Intervention, Help, Individuals, New Mom/Dad, Parents, Uncategorized, YOU
Those of us who work for the Center for Family Involvement are often asked what we do. To be honest, it’s difficult to explain because the list is so long. We have our fingers on the pulse of so many things that affect families affected by disability. Our main purpose...
by Guest Author | Nov 22, 2016 | BABY, Diagnosis, Early Intervention, Finding Balance, KIDS, Middle School, Parents, Uncategorized, YOU
By Nickie Brandenburger Parenting is challenging. When a child has a special need – the challenges can pile up a lot faster. The child is subjected to assessments, labels, and words that the parents have to decipher. While all the testing and labeling is designed to...
