REDEFINING RESILIENCE

REDEFINING RESILIENCE

By Valerie James Abbott In mid-December 2020, my husband texted me a photo of some crocus coming up through decaying leaves in our backyard. It was followed by a piece of dry humor – something about Spring must be coming soon. I didn’t find his message...
PLEASE, JUST GIVE US A SHOT

PLEASE, JUST GIVE US A SHOT

It is appalling that individuals with disabilities and the family members that serve as their caregivers are not being prioritized in the coronavirus vaccine rollout.  Across the country, we are being turned away. We are spending hours crafting emails, making...
REPRESENTATION MATTERS

REPRESENTATION MATTERS

By Valerie James Abbott There was a time when I didn’t really understand why representation mattered. I knew that when it came to toys, books and everyday things we see and experience that children might prefer toys or characters that look more like themselves, but I...
I DON’T KNOW HOW YOU DO IT

I DON’T KNOW HOW YOU DO IT

“I don’t know how you do it.” Parents like us hear this statement all the time.   My standard COVID reply has become, “I’m not.” It’s been almost a year in lockdown. And parents of kids with disabilities are not OK.  We feel forgotten. In many states,...
HOW WILL THEY REMEMBER US DURING THIS TIME?

HOW WILL THEY REMEMBER US DURING THIS TIME?

Being a calm, rational, attentive parent in these times is simultaneously important and impossible.   As if a raging pandemic weren’t enough, we now have an attempted coup, what appears to be a potential long-term insurgency right here in the United States of America,...
15 WAYS TO GET THROUGH THE DARKEST OF WINTERS

15 WAYS TO GET THROUGH THE DARKEST OF WINTERS

There is no getting around it, this winter is going to be difficult. We are facing some dark days – literally and figuratively.  Now is the time to stay home and embrace the suck.  There’s nothing wrong with making the best of it while acknowledging how hard...