by Erin Croyle | Jul 17, 2017 | BABY, Diagnosis, Extended Family, Friends and Acquaintances, Grandparents, New Mom/Dad, RELATIONSHIPS
Time has tremendous healing powers. But the deepest cuts always leave a scar, regardless of how many years fly by. I was talking to a parent recently who was in that terrible time right after a diagnosis; the fog where you question everything. You think about every...
by Erin Croyle | Jun 30, 2017 | BABY, Caregivers, Complications, Diagnosis, Finding Balance, Parents, PREGNANCY, RELATIONSHIPS, Uncategorized, YOU
Are you walking around in a haze? Are you constantly stressed? Angst-ridden? Anxious? Tired? Irritated? Sad? Annoyed? You might have DISABILITY FATIGUE. This isn’t an actual medical diagnosis. It’s a term that entrepreneur and advocate Cindy Liu highlighted in a...
by Erin Croyle | Jun 15, 2017 | Advocacy, Elementary School, IEP, KIDS, Parents, YOU
Us versus Them. That’s the attitude many of us have about our child’s school if an IEP is involved. We’re taught from more seasoned parents to come in with our gloves on, ready to fight. But what if I told you it doesn’t always have to be that way? What if I told you...
by Erin Croyle | Apr 21, 2017 | Advocacy, BABY, Diagnosis, Doctors, Early Intervention, Help, Individuals, New Mom/Dad, Parents, Uncategorized, YOU
Those of us who work for the Center for Family Involvement are often asked what we do. To be honest, it’s difficult to explain because the list is so long. We have our fingers on the pulse of so many things that affect families affected by disability. Our main purpose...
by Erin Croyle | Apr 19, 2017 | BABY, Diagnosis, Doctors, KIDS, Medical Team, New Mom/Dad, Preschool, Puberty, RELATIONSHIPS, Uncategorized
Comorbidity is an awful term. Morbid, a word we associate most with death, combined with the prefix co, which means together, mutually in common. There is nothing good about comorbidity. But many of us are dealing with it. Dual and multiple diagnoses are very common,...