PLEASE, JUST GIVE US A SHOT

PLEASE, JUST GIVE US A SHOT

It is appalling that individuals with disabilities and the family members that serve as their caregivers are not being prioritized in the coronavirus vaccine rollout.  Across the country, we are being turned away. We are spending hours crafting emails, making...
I DON’T KNOW HOW YOU DO IT

I DON’T KNOW HOW YOU DO IT

“I don’t know how you do it.” Parents like us hear this statement all the time.   My standard COVID reply has become, “I’m not.” It’s been almost a year in lockdown. And parents of kids with disabilities are not OK.  We feel forgotten. In many states,...
HOW WILL THEY REMEMBER US DURING THIS TIME?

HOW WILL THEY REMEMBER US DURING THIS TIME?

Being a calm, rational, attentive parent in these times is simultaneously important and impossible.   As if a raging pandemic weren’t enough, we now have an attempted coup, what appears to be a potential long-term insurgency right here in the United States of America,...
WHEELING IN A WINTER WONDERLAND

WHEELING IN A WINTER WONDERLAND

If ever we needed a snow day, it’s now.  The pristine white, the cushioned quiet, the calm, and for the kids (and the kid in all of us) the magical play.  For many, it’s not as simple as putting on snow gear and heading out the door. That’s especially true...