KIDS AND COVID: IT’S COMPLICATED

KIDS AND COVID: IT’S COMPLICATED

It’s impossible to comprehend the anxiety that families of medically complex and fragile children have felt since the start of the pandemic unless you ARE that family. “COVID is just not a big deal for kids.” That’s what we’ve been told...
LIVING IN THE COVID MULTIVERSE

LIVING IN THE COVID MULTIVERSE

Anyone else feeling like they are living in a completely different reality than those around them? For the Spiderman fans out there – it’s like we’re Peter Parker slipping in and out of other dimensions of the universe.  For our family of five with an 11-year-old...
N-O-R-M-A-L

N-O-R-M-A-L

By Jen Reese N-O-R-M-A-L I hate that term to its core but today I’m using it to describe our return to a more regular life post COVID. My 13-year-old daughter Cailyn has pretty much been homebound since the pandemic started. Her last day of school in person was March...
PLEASE, JUST GIVE US A SHOT

PLEASE, JUST GIVE US A SHOT

It is appalling that individuals with disabilities and the family members that serve as their caregivers are not being prioritized in the coronavirus vaccine rollout.  Across the country, we are being turned away. We are spending hours crafting emails, making...