by Guest Author | Apr 9, 2018 | Advocacy, BABY, Diagnosis, Early Intervention, Individuals, Medical Team, Parents, RELATIONSHIPS, Self-Advocacy, Uncategorized, YOU
by Irene Schmalz I am the Liaison to the Deaf/Hard of Hearing at the Center for Family Involvement. My primary focus is to help parents who just found out their child has failed the newborn hearing screening and/or received the diagnosis of a hearing loss. As part of...
by Guest Author | Mar 14, 2018 | Advocacy, BABY, Diagnosis, Extended Family, Friends and Acquaintances, Parents, RELATIONSHIPS, Uncategorized, YOU
by Jamie Bruen Recently it was mentioned how the world might be better without people with disabilities to a friend. She asked how I would have handled it, how words like that make me feel, if it is worth speaking out in anger. My son, Liam, is 99.9% physically...
by Erin Croyle | Mar 8, 2018 | Advocacy, Friends and Acquaintances, Individuals, Medical Team, Parents, RELATIONSHIPS, Self-Advocacy, Uncategorized, YOU
We are well into the age of the internet where nasty Yelp reviews and Facebook rants rule. We have every right to air our grievances and report wrongdoing. It needs to be done so poor treatment isn’t repeated. But it is so easy to get sucked into this cycle of...
by Guest Author | Feb 14, 2018 | Friends and Acquaintances, Help, Individuals, Marriage, Parents, RELATIONSHIPS, Self-Advocacy, Uncategorized, YOU
by Angela West This Valentine’s Day I want to share my experiences talking with parents about relationships and love. So often, parents tell me that they are scared that their child with disabilities will not understand the complications of having a relationship. They...
by Erin Croyle | Jan 15, 2018 | Complications, Help, Home Life, Individuals, Medical Team, Parents, PREGNANCY, RELATIONSHIPS, YOU
We are at the peak of one of the nastiest flu seasons on record, with a widespread outbreak across the entire continental United States according to the Centers for Disease Control and Prevention. Even as the spread slows (which it hasn’t yet), the risk of getting the...
by Guest Author | Nov 27, 2017 | Advocacy, BABY, Diagnosis, Friends and Acquaintances, Parents, RELATIONSHIPS, Uncategorized, YOU
by Elizabeth Crego What’s wrong with “cute”? Today, I was forced to have yet another awkward conversation with total strangers over why my almost five-year-old hates to be called “cute.” They were not talking to me, but my daughter was in earshot. So when I confronted...
